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Writing this memoir served not only as cathartic prescription for the author, it fulfills her promise to her son Travis that she would complete the story of his journey. |
| Kibou, The Travis Waters Story of Hope is the chronology of Travis’ cancer fight and is dedicated first and foremost to him. Travis wages a fearless, brave war against the enemy while not letting his fight interfere with his joy to make every moment count. |
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Charles W. M. Roberts, M.D., Ph.D. Assistant Professor of Pediatrics, Dana-Farber Cancer Institute |
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“KIBOU, The Travis Waters Story of Hope is the heart wrenching true story of Travis, a teenage patient of mine, as he is diagnosed with and battles cancer. Travis’ story provides inspiration and hope that we can help the next generation of kids.” |
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The bottom of the leg would require a prosthetic. This procedure offered a great benefit as it allowed total mobility retention. Travis could continue snowboarding, even jumping. But the skill complicated the picture. The tiny spot would require radiation to resolve the tumor. Surgery was not an option here. |
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Surgery was considered the most effective treatment for Travis' type of cancer. What a choice! But it was Travis' decision; it was his body. Should he elect permanent disfigurement when another portion of diseased tissue could not be removed surgically? Why bother with surgery? Everyone seemed to favor localized radiation of all sites. |
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Then there was another hard reality. In order to radiate this tiny spot on the skull and not cause brain damage, it was necessary to create a broader field. Radiation had to be directed from multiple wide angles to ensure no penetration through the skull. Such a plan would create a large round area of alopecia, a bald spot, at his forehead hairline. Travis always had the most beautiful hair. All cancer patients suffer temporary hair loss from chemotherapy, but his spot would be permanent. No remedies, other than hairpieces, were offered for the costmetic aftermath. This was not an issue, though. The main concern was to save Travis' life and pick up the pieces later. |
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The choice was a no-brainer. Travis elected not to have surgery and receive radiation to all areas. Everyone agreed it was the right decision under the circumstances. Jim stayed in Boston the rest of the week and my parents came up again from Florida. It was difficult for mom and dad not to be there more. They wanted to do something, but felt helpless, as did all of us. On April 20 we returned to Potsdam, finished with all initial chemotherapy and the first third of the protocol. |
| Address: |
| Kibou-Art |
| P.O. Box 412 |
| Fairview, NC 28730 |
| Telephone: |
| (828) 423-6958 |
| Email: |
| ellie@kibou-art.com |